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Update

After another week at home Chris has ventured back to school this morning, he has been so exhausted I wonder how he will cope, but he is very determined to make it through the school day, we will see. The plan is for him to be in school on Monday and Tuesday this week, then on Wednesday he will be back in Alder Hey for a couple days while he has a central line fitted and has a further bone marrow aspiration and the last of the induction phase of chemotherapy.
If all is well at that stage Chris will move on to the next stage, which will be quite intense I think... Such a lot for him to cope with, as if watching your hair fall out and your cheeks swell unnaturally as a result of steroids isn't enough to cope with when you're 14... He has banned me from posting photos here while he looks like that... still taking photos though!!!

Otherwise life carries on, I've been printing out leaflets to introduce our new SAMS mission partners, designing a term card for the church's Sunday services, preparing for the SCI Trustees meeting at the beginning of July and of course all the usual stuff like music group, Little Fishes and Coffee Plus. I have a fair bit of website work I need to get on with... as well as endless piles of washing!! - at least the sun is shining to help dry it just now.

Comments

( 8 comments — Leave a comment )
natesmountain
Jun. 16th, 2008 11:10 am (UTC)
Poor Chris, I hope he can just cover up all the mirrors for a while and not think about it.

You're still getting lots of things done, that's good.

We're always thinking of you and my classes have prayed for Chris.
vivh
Jun. 16th, 2008 11:19 am (UTC)
Thanks for all your thoughts and prayers, life is very strange here, but you can't just stop the world....

Hope everything is okay with you, I've been thinking about you lots!!
natesmountain
Jun. 17th, 2008 11:23 am (UTC)
I guess the world keeps turning no matter what our turmoils and trials, and it's great that you seem to be dealing with this awful thing as best you can xx

Alex's parents found a lot of people said 'why did your child get cancer, it's not fair' and so on, and they found it best to just say, 'who knows, it just happened, let's just deal with it'. The whirlwind that is chemo and all that it brings with it is huge enough to deal with, huh.

I haven't posted as I've been feeling very sad lately. It's just things. Nothing important in the grand scheme of things. I really miss posting though. I just couldn't do it. And I've been carrying around stuff for Chris in my bag for nearly two weeks, it's ridiculous. Tomorrow... I keep saying that.

And I was just answering this at half past five this evening, when a friend arrived at the door, then the cable went out. Tv and Net. I phoned the Telstra people and a recorded message said that the cable in, wait for it, Miramar and Strathmore, was out!! Yeah, that was us. It just came back now, just before midnight!
vivh
Jun. 18th, 2008 05:50 am (UTC)
Asking "why?" in this sort of situation is useless... all you can do is deal with each day as it comes. I look ahead only to plan what needs to be planned, dwelling on the months of chemo that lie ahead for Chris is just too heart breaking to bear and looking beyond that time too hard to imagine.

Thinking of you always.


natesmountain
Jun. 18th, 2008 07:59 am (UTC)
Yeah, I think one day at a time for now. It sure is hard to look at what is ahead. But way ahead, it will be passed and things will be somewhat normal again. There were so many times when De and I look back and think, wow, that was awful for them but they came through and it's made us special friends because of it. I hope your friends over there will be there for you whenever you need it.

I do feel for Chris. He's at a really, really hard age for this to happen. So I'm thinking of you always too xx
moth2fic
Jun. 16th, 2008 08:22 pm (UTC)
I met Marg in London today and she has brought a gorgeous beanie (Adelaide Crows) for Chris but has given it to me in case you aren't available to meet up when she's in our area. I shall post it later in the week so that Chris has something to add to his collection!
vivh
Jun. 18th, 2008 05:51 am (UTC)
Thanks, that would be great. His hair is nearly gone by now!
microjotz
Jun. 18th, 2008 07:39 am (UTC)
One step at a time. Love and prayers for you all.
( 8 comments — Leave a comment )