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A very quick update!

I can't believe it is half term already... time has flown! This week Chris managed a full week at school because there were no hospital appointments scheduled. Overall he has pretty much only missed school on treatment days so has managed to be in school about 3/4 days a week on average. Friday was a pink day at school, Chris seriously considered wearing my fluffy pink dressing gown but in the end opted for a more discreet fluffy pink scarf!!! Chris finishes the phase of chemotherapy called escalating capizzi and will be starting what they call delayed intensification 1...

While Chris has been at school I have managed a trip to Leeds to see John and talk about things Mongolian and a trip to Buckley to have lunch with Margaret at her new house there. Overall things have been very busy and look set to continue that way until Christmas.. Autumn is definitely here it is getting colder and darker and the trees are beautiful colours, might post some Autumn pics soon if I get the time. Matthew and I are off to Durham today - must go and get ready!!!


( 5 comments — Leave a comment )
Oct. 18th, 2008 08:25 am (UTC)
Wonderful news about how well Chris is doing!

Between us we're so busy I can't see us getting together before Christmas, but I'll get in touch after our next trip to Portugal and see what we can do.
Oct. 20th, 2008 11:06 am (UTC)
Would love to catch you before Christmas if we can find a time... have passed through Manchester 4 times in the last week!! - was thinking of you!
November is really busy, December slightly less so, but I'm sure we can find a day somewhere...
Oct. 20th, 2008 02:40 pm (UTC)
November is frantic for me because we're driving out to Portugal and won't know how long for till we get there... December sounds more likely but I'll be going down to London for a few days. Will get in touch when I have more info!!
Oct. 20th, 2008 10:49 am (UTC)
That is fantastic that Chris has managed to get to school so much. It must say something about his resilience. I was talking to one our our teens last night and he was telling me he hasn't been to school since his diagnosis and I felt so sad for him as I just knew that he'll never go to school again, not because of any prognosis but just that is an easier route for him just now, not to go. He's 17. He said he wanted to go but I know underneath it all is a million things left unsaid, for now. My heart just ached for him. These teenagers are just fantastic young people with so much to cope with and they do it with such dignity and humour and tolerance.

How did Durham go? You were just down the road from me. Next time...
Oct. 20th, 2008 11:31 am (UTC)
Yes Chris has done so well with getting to school and church and youth group, I think doing all those things actually makes it easier to deal with all the rubbish that is part and parcel of the treatment - helps with motivation and gives structure to our days and weeks!! The boy who was diagnosed the day after Chris has not been back to school either. He was 16 at diagnosis, he is much poorlier than Chris because he has philadelphia chromosome positive ALL... but like the boy you mention I doubt he will ever return to school, regardless of prognosis...
Another boy who made me feel really sad was a 16 year old who had just left school when he was diagnosed, I asked if he had any plans, he said " I did have plans, I was just about to start an apprenticeship, but now I have no plans, I have no idea at all.." - he was such a cheerful boy but it was as if all his hope for a future had just dissolved in the disease.

Durham was great, but it was definitely a whistlestop tour... we spent about 2 hours exploring Durham and about the same in York - they are both places Matthew is applying to for Uni and he wanted to have a look around. Really nice day but would love to have been able to stay longer!!
( 5 comments — Leave a comment )